The High-Low Functioning Roller Coaster

I was recently reading an article which explained why experts in the field of autism are moving away from the term "high functioning autism" to describe autists who are able to achieve excellently academically and in other areas like arts and music. 

It explained that many autistic people have high functioning and low functioning days dependent on any triggers, stresses, biological changes etc that may have impacted them.

This has been quite impactful for me to consider as I always felt like I was going stir crazy when Peter's personality would completely change when he was on annual leave from work. The difference was so astounding that when I first noticed this in the early months of dating Peter, I thought that he was going on and off me. I'd often wonder what I might have done to upset him, then he'd be off work again a few weeks later and we'd be loved up again. However, as it turned out, Peter could not actually function in an intimate relationship and go to work at the same time. Too much demand. Emotional overload.

I am finding this in other areas of our lives too: he can't go to work and make parental decisions; he can't go to work and empathise with our child's emotional needs in school; he can't go to work and make plans for the future; he can't go to work and keep track of any family events at all.

When Peter is working he forcefully functions all day and he returns home a shell of himself. He sits in the quiet, scrolling mindlessly through his phone. He does not want to speak, he does not want to cook, he can't read, he can't have sex, he can just about exist. He returns home and stares a lot, his body is sluggish, he can not hold a conversation, he will keep falling asleep for a few minutes at a time as he sits with the children. At meal times, he eats and stares whilst his family connect all around him. He will eat dry foods mindlessly like crisps and crackers late into the evening, not realising how much he's eaten. He is completely unaware. He often can't remember his journey home from work.

Contrastingly, when he is not working, Peter is full of lively energy. He can not sit still. He has ideas of places to go and things to do. He has packed a family picnic before everyone else is dressed. He's impulsive. He wants to plan.  Of course, he ignores vital, important details and his time management is still crazy, yet he functions. He listens to our daughter's problems although still prioritises solutions over empathy, he chats at the dinner table, he cooks. He's a different person in the same skin.

It made me ask myself, could I actually consider Peter to be high functioning after a hard day's work? Absolutely not. He is a zombie.

Peter and I no longer live together of course, but the article made me reflect on the times of low functioning and on my own self doubts at what I was seeing and experiencing with him. 

 From the reliable, dependable, chatty, friendly personality that I'd come to know, that his work colleagues know, who was this vacant man who used to sit at the dinner table with us at the end of each day? I know now that he was functioning on his basic settings because he was depleted and burnt out. 

So many Cassandras are confused by the cognitive dissonance of their partners, unable to fathom how they can switch between two distinct personas. It's another layer to the cassandra syndrome- feeling like we're seeing and imagining things. But, we're not. 

Peter used to describe me as an emotional roller coaster and he was right, I was. But I now find myself wondering if this was a side effect of his roller coaster- as I had to sit next to him in his carriage day after day, functioning at his best one minute, to barely functioning at all, up and down, around and around. Yet, he was too mind-blind to even notice. And as often our men don't look inward, they only see that we are to blame. 

It's sad that he can not recognise his own limitations, get the support that he so clearly needs to enable him to be a better partner and parent. Autism isn't to blame for that, pride and ignorance is. I'd like to think that one day, he'll look back and wish he'd have committed to helping himself, but I'm not sure that he'll ever truly remember how much he needed help in the first place. 

Will I Ever Be Free?

Having two children with a man like Peter makes life difficult. He is emotionally detached, highly dysfunctional, neglectful, disinterested and yet possessive of all of us. 

We belong to him.

I've had to implement some harder boundaries over the last two weeks following a sharp decline in my mental health. Having his practical support which is so useful when I have no family support, comes at a price. I've had to explain to Peter that it is not ok for him to climb into my bed to watch the football after he's come to the house to put the children to bed, that he can't just stay over in the spare room when the feeling takes him and not inform me. 

It's been soul destroying to have to explain all of this to him because when you're separated, surely it's obvious? But they don't see or understand humane boundaries unless it's in black and white. 

I've driven myself crazy wondering if it's asking too much for him to continue walking our family dog a couple of times a week. Do I need to be more black and white? Should I pay someone, can I afford to? Because already, I'm paying for domestic help so that I can work and become financially independent of Peter eventually. 

Mostly, after 18 months, I long to feel loved and wanted. I am at a point in my life where I would like to find love again or even just date, but how do I do so when Peter is still so prevalent in my own life? How do I let go fully of the children when in his care? Will another man actually understand why we still holiday all together? When will it be safe for me to entrust Peter with care of the children on holidays? Will I ever? 

If I meet a man who accepts our co-parenting situation will it be because he's actually incapable of deep commitment and so I'll end up eventually with another Peter?

So many questions. 

So many worries and uncertainties.

Every time I've explored my values "freedom" is always my number 1. Freedom of expression, the freedrom to be me, the freedom to enjoy my life. I'm not free to enjoy my life whilst Peter plays such a major part in it and I don't see how he will stop playing a major part until the children are older. Then I foresee myself having to undo the consequences of his reactive parenting and his control over our lives. 

I am trapped.

So many women are. Because we prioritise the health, safety and well-being of our children above all else and so we live half lives until our time comes, hoping and praying that we'll make it to then.